Chronic Fatigue

[Elgama]

either me or Gabelma started one before I lost the internet noone had posted and I tried to resurrect it but guess it had been forgotten
Groups » LDS Mormon Network

My goal with it had been to focus on the spiritual aspect of healing the soul as much as the body and learning to live with it but happy for a new focus lol I
wanted to change the illness from a trial to a blessing which is what I am working on in my own life.

actually i had forgotten about it too

-Charley

[Elphaba]

Originally Posted by mattai

I know with most auto-immune illnesses that there's also an emotional component too (like depression, or some childhood abuse or truma) that the emotional pain is triggering physical pain. So focusing on the emotional side of things through counseling, may also alleviate or ease some symptoms.

Actually, it is a myth that childhood trauma causes auto-immune diseases. Most people who contract these diseases had normal and happy childhoods.

For years I worked with a specialist in CFS/FM, and she was always very aggravated at the Social Security judges, especially one who would not grant a person disability for fibromyalgia unless s/he had been sexually abused as a child. She knew this did not hold true, but this one judge would not budge; thus, a significant nuimber of people with CFS/FM were denied disability, when, in fact, they were as sick as anyone else.

In fact, depression is secondary to CFS, as it is to FM/LS/MS, and almost everyone who contracts one or more of these diseases experiences great bouts of grief and hopelessness.

Again, there is a link between these auto-immune diseases and the patient's depression; however, the depression is secondary to the disease, not the cause.

Elphaba

[HerbalLady]

Originally Posted by Hemidakota

I know when I was used to work in a government lab with mil-spec radios, even the low band emission would be a cooker for the brain and the body. After a few hours we would experience chronic disorders and fatigue would set in. Even the older cell band that was found resonating in the 900mhz band was a detrimental device for humans. The brain cavity does resonate on the same frequency. Looking back at Tesla writings, anything that resonate in the same freq band would cancel each other and could cause havoc ... look around to see what other household products, electronics maybe causing some damage to you.

I did some research on electronic devices and health problems connected, and I agree. If we want good health, we don't carry electronic devices in our pockets, or put them on our heads. If we do, most assuredly, health problems will follow. Thanks for the post.

[HerbalLady]

Originally Posted by pam

Herbal Lady...did you delete your group or did it get lost with the downing of the site yesterday?

Thanks. Yes, I did start a new group (Herbal Remedies for Wellness), and used my old avatar- I wrote and asked Heather if she could fix it. I did write a blog responding to your question today. Sorry about the wait. I think it fell into a pit for a while because of the avatar change...

[Elgama]

don't know about anyone else but I have had mine since I was tiny - I remember walking to playgroup so must have been 3 or 4 on the sides of my feet because to put them down was agony... I have had trauma and psychological pain in my life but my Fibromyalgia A) predates this and hit me worst at my most secure, I was away from home and having a ball.. It also goes into remission when I am pregnant, a time when I do suffer from depression.

Yes of course there is an emotional componant - even someone with a dose of flu lasting 3 weeks can get depressed, have yet to meet anyone in constant pain and exhaustion that can cope without emtional stress for a few days let alone many years. And I know from my own experience helping the emotional side helps the physical - there is also ways I am sure where we can learn to help the spirit override the body, that is what I am working on.

-Charley

[Misshalfway]

I just read a fabulous book...."From Fatigued to Fantastic" and it really helped me construct an action plan.

I first addressed the sleep issue and have been taking something to help me fall and stay asleep. In the last month, I have been sleeping better and I do feel a difference. I have also changed my supplements and I think that is starting to make a difference too. The emotional component is so confusing and frustrating to me. I sometimes think it is physiological and should fight it in that realm and other times I am sure I need to address emotional issues. But then I remind myself that I already know the issues and have addressed them. So....back to the physiology.

Anyway, I talked to my Dr. about all of this. He isn't helpful. I kinda feel like my own Dr. at this point. But I would like to find a Dr. that my insurance will cover. I did find one Dr. in Provo but going would have been very expensive so I didn't do it. Figured I could try to follow the book until another Dr. was found.

[StrawberryFields]

Sorry to hear of what you are going through MissHalfway. As I read your words it took me quickly back maybe 10+ years ago when I was in a bad way. It was three years before that when I too was going through a bunch of tests. It was when I was going through a series of RA tests that I was diagnosed with Fibromyalgia. I read up on it and became very very depressed and decided I needed to embrace this part of my life. I became a couch dweller and not much more. I had people contacting me some who knew people with it and others who wanted to take care of me. I hated the way I was looked upon by others and after about 8 long months of pure suffering I decided to take it day by day and listen to my body. I put all of the books away and began to live again. I am not saying that my story will work for everyone but slowly, ever so slowly I began to feel a bit better. My doctor but my on gyfension which is an expectorant in high doses and I drank a lot of water. I would say no to some things when asked and I learned to accept that I could not be 100% everyday but I would shoot for the moon and if I could reach the stars I was satisfied. I had the issue of Candida and it was so hard for me to break the sugar habit but with that I also felt some relieve. I also had endometriosis, which was causing me a great deal of pain, and I required surgery twice to get rid of that pain and I have not looked back. I am glad you are taking the Prozac I believe it can help a lot and sleep will not only help with your mood and pain but also your weight.

My heart goes out to you MissHalf. Let me express to you that there is light at the end of the tunnel and you have friends who love you.

Hugs, SF

[applepansy]

Dear Miss,
I'm sorry its taken me to long to get the list of books. I forgot. One of the many symptoms of CFIDS and FMS is brain fog. I've been extremely foggy this winter.

I'm happy you found Dr. Teitelbaum's book. I take B12 injections and they help a lot.

Two other books that you might fing helpful are:
A Delicate Balance by Susan Milstrey Wells

and

Fibromyalgia & Chronic Myofascial Pain Syndrome by Dr. Devin Starlanyl & Mary Ellen Copeland. Its in its second edition and address Chronic Fatigue. They have a second book called The Fibromyalgia Advocate. Its good too.

Dr. Starlanyl has a website and her books can be found used at Amazon.com I usually have at least two copies so that I can loan one out and still have one to refer to.

I'm sorry you're going through such a rough time. Winter with the storms and weather changes really beat me up.

You are in my prayers,
applepansy

[HerbalLady]

Originally Posted by Misshalfway

I just read a fabulous book...."From Fatigued to Fantastic" and it really helped me construct an action plan.

I first addressed the sleep issue and have been taking something to help me fall and stay asleep. In the last month, I have been sleeping better and I do feel a difference. I have also changed my supplements and I think that is starting to make a difference too.

I read this book also and tried several supplements. It was helpful in constructing a personal wellness plan but D-ribose did not 'restart' my hypothalamus as he had suggested. I had better results with an all natural vitamin and mineral, and adrenal gland booster which I purchased from the health food store. I am very interested in your progress, as I have a relative who is still suffering a lot with CF, Fibromyalgia, and Endo. Thanks!

[applepansy]

Originally Posted by Misshalfway

Anyway, I talked to my Dr. about all of this. He isn't helpful. I kinda feel like my own Dr. at this point. But I would like to find a Dr. that my insurance will cover. I did find one Dr. in Provo but going would have been very expensive so I didn't do it. Figured I could try to follow the book until another Dr. was found.

I'm sorry you're struggling with these issues. They are not fun. It's so very important to have a doctor who understans and is willing to help and be on your side.

If you can't see Dr. Lucinda Bateman maybe her staff has a list of physicians who are sympathetic to CFIDS and FMS. I know Dr. Bateman spends 1/2 her time educating physicans on these illnesses.

Here are some websites that you might find helpful:
CFIDS

YouTube - Part 5: "Challenges in CFS Patient Care" - Dr. Lucinda Bateman - Senate Briefing.wmv

I also have a presentation Dr. Bateman gave about communicating with your physician. If you're interested send me a message and I'll be happy to email it to you.

Another source to find a good doctor is O.F.F.E.R. They are a support group in SLC for FMS and CFIDS. Their website is Welcome to the OFFER Website

I hope you find the help you're looking for. You're not alone.

applepansy