As if having issues between my son and husband were not bad enough, a month ago I developed blood clots in my leg. This is extremely odd for me because I have a blood disorder called ITP which means I have low platelets, which is what thickens your blood and causes blood clots. In other words, I shouldn't clot enough for a blood clot. Keeping that in mind, my regular doctor sent me back to my hematologist, whom I hadn't seen for 2 years because my ITP was in remission, to find out why I got blood clots.

So two weeks ago the hematologist ordered lots of blood tests and today was my follow up visit with her. I really thought she was going to tell me that they didn't know why I had the blood clots, it was probably from being too lazy and sitting too long on a car ride. I wasn't at all worried about the doctor appointment. Imagine my surprise when she told me that I needed to go to the leading specialist in the state because they don't know how to treat my condition.

In addition to having ITP, I also have some other auto immune blood disorder which is somehow related to Lupus, although I don't have Lupus. I have no idea what the name of this new disorder is. She told me that three years ago they were regularly testing me for this disorder and my levels were slightly elevated (which is bad). Now the results have doubled (which is really bad).

In layman's terms what that means is that I am at serious risk for an embolism (something that blocks the blood in my arteries thus resulting in a stroke, heart attack, death). She's making an appointment for me to see the specialist ASAP.

I'm scared.

Tags: ITP Lupus Blood Disorders